Medicine subject guide - Links
Palliative care
Databases | Government sites | University sites | Organisations | Reference sources and e-texts | Newsgroups and discussion groups
Databases
Growth House End of Life Database - UB Center for Clinical Ethics and humanities in Health Care
The End of Life database allows you to search or browse web sites in the areas of care for the dying and bereavement and loss, amongst others. It contain some excellent links to prefessional resources.
The National Rehabilitation Information Center
REHABDATA, produced by the National Rehabilitation Information Center, is the leading literature database on disability and rehabilitation. The main file, 1993-present, describes over 12,000 documents covering physical, mental, and psychiatric disabilities, independent living, vocational rehabilitation, special education, assistive technology, law, employment, and other issues as they relate to people with disabilities.
Government sites
Bioethics Resources on the Web - End of Life/Palliative Care
A National Library of Medicine resource, this site provides links to a number of online resources in palliative and end of life care.
National Palliative Care Program
The National alliative Care Program provides a link to the National Strategy for Palliative Care in Australia 1998 - 2003 as well as a link to a report into perfomance indicator development in palliative care.
University sites
Centre for Palliative Care - University of Melbourne
The Centre for Palliative Care has established major teaching programs, internationally significant research programs and expanded clinical services. The Centres main focus areas are: Clinical Services/Practice, education including undergraduate, postgraduate and other educational activities, research, and promotion of palliative care.
Palliative Medicine Program - Medical College of Wisconsin
The Palliative Medicine Program is committed to improving care for the dying in America through the development, implementation and dissemination of innovative education and clinical care programs. The site has a number of links to clinical care resources as well as hardcopy educational resource materials that can be ordered.
Organisations
American Academy of Hospice and Palliative Medicine>
Australian and New Zealand Society of Palliative Medicine Center to Advance Palliative Care European Association for Palliative Care Growth House Guide to Death, Dying, Bereavement, and End of Life Resources International Association for Hospice and Palliative Care Palliative Care Association of South Australia Royal Australasian College of Physicians Chapter of Palliative Medicine
This is a gateway site to end of life resources over the web. It contains toimages pages to explain major palliative care issues and has a searchable database.
Reference sources and e-texts
The ACP Home Care Guide for Advanced Cancer
This guide is for the family, friends, and hospice workers caring for those patients with advanced cancer who are living at home. It provides the information they need to deal with caregiving problems while working cooperatively with a team of palliative care health professionals.
The Caregivers handbook
An excellent resource for both the caregiver and receiver. Provdes a very useful overview on what is required and how to look after an elderly patient.
Discussing Palliative Care with Patients - American college of Physicians Center for Ethics and Professionalism
An online article that discusses how health professionals should dtalk to patients about end of life issues.
EPEC (Education of Physicians in End of Life Care) Project - American Medical Association
The EPEC Project is a US initiative to educate physicians in the essential clinical competencies needed in end of life care.
Internet Information Notes: Hospice and Palliative Care - National Aging Information Center
This site has a good set of links to national forums, contreversial issues, and hospice and palliative care.
StopPain.org at Beth Israel Medical Center
The Department of Pain Medicine and Palliative Care is dedicated to providing comprehensive care of the highest quality in pain management and palliative care, and advancing the educational and research aims of these disciplines. The site provides a model of palliative care treatment at the hospital.
Scranton-Temple Residency Program - Palliative Care Website
The purpose of this site is to provide a palliative care reference site for physicians, residents and other healthcare providers. In addition, we hope to provide support for patients and families in need. While we have provided links to local hospice and palliative care services, we have also provided links to state and national websites.
Toolkit of Instruments to Measure End of Life Care (TIME)
An authoritative bibilography of instruments to measure the quality of care andquality of life for dying patients and their families.
Newsgroups and discussion groups
HOSPIC-L
The listserver for people interested in Hospice and Palliative Care.